June 2009 | Somebody Heal Me

Tuesday, June 30, 2009

My 'Right Now' List: Summer 2009

- Season two of True Blood on HBO.

- Some great books:

- Cutting for Stone by Abraham Verghese

- The Writing on My Forehead by Nafisa Haji

- Broken Open: How Difficult Times Help Us Grow by Elizabeth Lesser

- Sandra Bullock's new romantic comedy, "The Proposal" (Ryan Reynolds is so hot!).

- The latest Pixar film, "Up."

- All of my favorite Michael Jackson & Jackson 5 songs on repeat.

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Content by Diana E. Lee.

DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.

Monday, June 29, 2009

Time to Quit: Smoking May Trigger Migraine Attacks

According to the Journal of Headache and Pain, a small study of medical students in Spain shows that smoking more than 5 cigarettes a day may be a migraine trigger.

Migraine frequency among students who were migraineurs and smokers was higher than among students who were migraineurs, but non-smokers. The researchers found that the migraineurs in the group were more likely to be smokers.

Quitting smoking can be extremely difficult, but for migraineurs this is yet another reason to make the change. I quit smoking cold turkey the summer after I graduated from college. It was hard and I miss it sometimes, but it was probably the best thing I've ever done for my health and the planet. I think I deserve major kudos because I started law school that fall and stuck to my commitment. It was hard!

Sources:
Smoking as a Precipitating Factor for Migraine: A Survey in Medical Students
Smoking More Than 5 Cigarettes a Day Provokes Migraine Attacks

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Content by Diana E. Lee.

Friday, June 26, 2009

Greedy: Things I Need Right Now

Things I need right now:

- Regina Spektor's new album "Far"

- better fitting pants & jeans - the Oprah re-run inspired me

- an eyebrow & (gasp!) lip wax

- S'mores Cheesecake with Summer Berries

- Mark Bittman's Eggplant & Chicken Parmesan

- someone to make my husband take me to the Green Day / Franz Ferdinand show

Who wants to hook a girl up?

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Content by Diana E. Lee.

Announcing July 2009 Headache Blog Carnival

Entries for the July 2009 Headache & Migraine Disease Blog Carnival are due by the end of the day on Friday, July 10th.

There is no theme for the July carnival. Instead, submit your favorite post from the past month.

Posts may be submitted through the form on the carnival website or directly to me by e-mail.

The July carnival will be posted on Monday, July 13th at right here at Somebody Heal Me.

For more information about the carnival visit this link: Headache & Migraine Blog Carnival.

Please let me know if you'd like to be added to the e-mail list for the carnival, if you're interested in hosting a future edition or if you have suggestions for future themes.

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Content by Diana E. Lee.

Thursday, June 25, 2009

June 2009 Pain Blog Carnival Posted

The June 2009 Pain Blog Carnival is posted at the How to Cope with Pain blog. There are lots of great topics covered in this month's posts. Definitely check it out.

June 2009 Pain Blog Carnival

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Content by Diana E. Lee.

Being a 'Difficult Patient' Could Compromise Your Quality of Care

Kevin MD recently wrote about a study indicating that doctors are frustrated by the behaviors of as many as 15% of their patients. The most common complaints are:

1. Failing to disclose use of herbs and supplements.
2. Stopping medications without telling the doctor.
3. Refusal to make lifestyle changes and seeking an easy or quick fix.
4. Demanding a certain medication.
5. Demanding every test under the sun.
6. Interfering loved ones in the exam room.

How Patients Can Annoy Their Doctors

Kevin makes a lot of valuable points, but I have just a couple of thoughts to add.

It's important to view the doctor patient relationship as a partnership. Your role as the patient is not to dictate or demand; the doctor's role is not to blindly acquiesce to your requests. It is essential to work together to come up with ideas and solutions and discuss the merits and drawbacks of each possibility.

I'm a firm believer in sticking to your guns when you have an instinct about a particular approach to your medical care. However, it is also important to be open minded and willing to change your mind if you are presented with information you weren't already aware of. We all have strongly held convictions about certain issues, but as intelligent people we also know that as we learn more our views evolve. After all, if we knew everything there is to know why would we need to see doctors and other experts in the first place?

Finally, I'm in favor of bringing a loved one along to appointments for support and help processing the experience after the fact. However, it is important to choose someone who will be respectful of the doctor's need to interact directly with the patient and not chime in with negative, baiting comments that distract the patient and take valuable time away from the doctor. You know your loved ones, so be honest with yourself about who is a good choice to accompany you and who isn't.

Source:
Six Patient Behaviors That Drive Doctors Nuts

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Content by Diana E. Lee.

Wednesday, June 24, 2009

Managing Migraine as a Chronic, Progressive Disease

Renowned headache specialist Dr. Roger Cady of the Headache Care Center in Springfield, Mo., has written a fascinating, informative editorial in the most recent edition of the Mayo Clinic Proceedings publication about the growing understanding of migraine disease as a progressive disorder. His editorial accompanies two articles reviewing the progressive, debilitating nature of migraine disease and its devastating impact on sufferers' lives and families, businesses and society at large.

The Future of Migraine: Beyond Just Another Pill

Interestingly, Dr. Cady considers this new understanding about the progressive, sweeping nature of migraine a positive sign that migraineurs can expect better treatments that will improve their quality of life. He says doctors will need to move beyond the traditional methods of treating migraine patients and toward more comprehensive, personalized therapies that focus not only on aborting attacks, but also on preventing the progression of the disease.

Sources:
Mayo Clinic Proceedings: The Evolution of Migraine from Episodic Headache to Chronic Disorder

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Content by Diana E. Lee.

Tuesday, June 23, 2009

5 Tips for Communicating with Your Doctor When Migraines Steal Your Words

When you are experiencing a migraine or recovering from one it can be difficult to express yourself as well as you ordinarily would. Finding the right words can be challenging and sometimes your brain just doesn't move as fast as it normally would. Even though most doctors know this can be a problem, when they are busy and distracted it might not occur to them to give you some extra time and attention.

Here are some tips for working around migraine-related communication difficulties when you see your doctor.

1. Prepare a list of questions and concerns in advance.

2. Bring at least two copies of your list to the appointment: one for you and one for the doctor.

3. Bring a trusted friend or family member to help make sure you get all your questions answered and concerns addressed.

4. State up front that you are having a migraine or recovering from one and having more trouble than usual expressing yourself.

5. Take notes during the appointment in case you have trouble remembering what the doctor said.

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Content by Diana E. Lee.

Monday, June 22, 2009

Radiofrequency Procedure Done, Now We Wait & See

I had the RFA procedure this past Wednesday, and it went well. Seeing a doctor I wouldn't mind chatting with in regular life isn't usually important to me given the difficulty of finding doctors knowledgeable, experienced and gutsy enough to to take me on. But it somehow seems more important when you're lying face down with your arms jutted out behind you in anticipation of yet another medical procedure. It's nice to be a little bit comfortable with the guy getting ready to stab your neck with needles and burn your nerves.

The procedure itself hurt a lot (not the radiofrequency part but rather the needle insertion part), but Dr. G. used plenty of numbing medicine and they put good stuff in my IV that made it tolerable while he worked.

The first few days I was very sore and relied on steady pain meds to keep the pain to a tolerable level. The pain from the procedure has improved a lot since Wednesday. I'm still having some bad head pain and migraines, though, so I hope that will eventually die down.

Dr. G. said I can expect the pain from the procedure to last as long as two or three weeks and that my pain will most likely get worse before it gets better. I'm hopeful, but guarded, that I might get some lasting results from the procedure with time. I go back for a follow up appointment in a month.

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Content by Diana E. Lee.

Thursday, June 18, 2009

Migraines in Pregnancy Increase Risk of Stroke, Preeclampsia

The shift in hormones that results from pregnancy reduces migraine frequency among many women. As many as 42 to 98% of migraineurs experience fewer migraines during pregnancy. However, worsening migraines or a new appearance of migraines during pregnancy can signal the potential for serious problems.

Pregnant women generally have a 3 to 13 times greater risk of stroke than women in the general population. According to a study published in the British Medical Journal, women who experience migraines during pregnancy, however, have a 17 times greater risk of stroke. Furthermore, the BMJ study found that women who have migraines before, during and after pregnancy have twice the risk of experiencing preeclampsia (a term for high blood pressure during pregnancy).

Researchers think these increased risks may be due to mutations in the genes that regulate blood clotting. Blood clots can form in the lungs and veins as a result of abnormal clotting. These clots can interrupt blood flow to the brain and lead to a stroke.

Consequently it is very important to make sure your doctors are aware of your history of migraines if you are pregnant. Abnormal clotting can be treated with blood thinners and women can be closely monitored for preeclampsia to reduce the risk of complications.

Sources:
Migraines, Pregnancy and Stroke
Preeclampsia - MayoClinic.com

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Content by Diana E. Lee.

Wednesday, June 17, 2009

Migraine Chickie Featured in Neurology Now Magazine

Fellow migraine blogger and inspired cartoonist Migraine Chick is featured in the May/June 2009 issue of Neurology Now magazine!

Neurology Now is a free magazine published by the American Academy of Neurolgy for patients with neurological disorders and their family and friends. Many doctors offices have copies on hand or you can subscribe online. It's a great publication and I was so excited to see a friend and her work featured in it this time.

Neurology Now Subscription Information

Check out Migraine Chick's comics:

Migraine Chick Comics

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Tuesday, June 16, 2009

Majority of Child Migraineurs Experience Pre-Migraine Symptoms

In a French study of pediatric migraine patients researchers found that 67% of these children experienced at least one of 15 known non-headache symptoms that precede a migraine attack.

The Prevalence of Premonitory Symptoms in Paediatric Migraine

According to an article about the study in the journal Cephalalgia, the most common of these symptoms were face changes, fatigue and irritability. Researchers believe face changes to be unique to pediatric migraine patients.

This information could be valuable to the parents and doctors of child migraineurs because knowing a child experiences certain symptoms in anticipation of a migraine attack provides a heads up the child will need treatment for an attack.

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Content by Diana E. Lee.

Monday, June 15, 2009

Found: Hot/Cold Pads & Natural Aromatherapy Spray on Etsy

Applying cold and heat to different parts of your body can be very comforting, soothing and relaxing when you're in the middle of a migraine attack.

Etsy seller theferriswheel has pads that can be heated or chilled and are available in a variety of colors and beautiful patterns. The store also offers an aromatherapy spray designed to be applied to the pads for even more comfort.

Migraine, Headache Relief Set - Targeted Hot, Cold Therapy Packs

Migraine Spritzer Aromatherapy Pack Spray

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Content by Diana E. Lee.

Friday, June 12, 2009

AAPD Petition Calls on Government to Better Meet Needs of Disabled, Chronically Ill

The American Association of People with Disabilities (AAPD) is spearheading a movement to demand that Congress and the President work toward legislative reform to better meet the needs of Americans with disabilities and chronic illnesses.

The AAPD is calling on the government to reform private insurance, provide access to health care based on need rather than employment or economic status and address the disparities and accessibility issues that prevent people from getting quality care in their communities, among other goals.

You can learn more about the AAPD petition and sign it yourself by visiting this link:

Petition for Health Care Reform that Meets the Needs of Individuals with Disabilities and Chronic Illnesses and their Families

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Content by Diana E. Lee.

Thursday, June 11, 2009

Sinus Issues Associated with Greater Occurance of Chronic Headache

According to a research study conducted in Oslo, Norway, people with chronic rhinosinusitis are nine times more likely to experience chronic headaches than the general population.

Rhinosinusitis is inflammation of the sinuses. It is usually caused by a bacterial or viral infection, but when it is chronic, the cause is not clear. It is thought that bacteria, viruses or fungi could play a role, however.

The researchers said the symptoms of people with chronic rhinosinusitis and chronic headache were greatly improved after utilization of a variety of treatments including nasal surgery, nasal corticosteroids, discontinuing overused headache medications and discontinuing use of nasal decongestants.

The researchers speculate this type of headache may be distinct from other categories of headaches.

Sources:
Chronic Rhinosinusitis Gives a Ninefold Increased Risk of Chronic Headache: The Akershus Study of Chronic Headache
Rhinosinusitis: What is Rhinosinusitis?

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Content by Diana E. Lee.

Wednesday, June 10, 2009

Will Health Care Reform Help Doctors Give Patients More Attention?

How awesome would it be if all doctors were able to dedicate this kind of attention to their patients? Our current system makes that next to impossible, but hopefully reforms are on the way to improve the situation.

If All Doctors Had More Time to Listen

Sitting with his patient and her son, Dr. Batlle cut the number of her medicines to four. He also gave the family his personal cellphone number.
Before coming to see him, the woman had endured several emergency-room visits and hospital stays. With Dr. Batlle, she was able to avoid all of that.
Calling a doctor on his cell? No waiting for an appointment? It’s the type of service that Dr. Batlle tries to offer to all of his 1,500 patients. “I prefer to keep them healthy than treat them when they are sick,” he says.

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Content by Diana E. Lee.

Tuesday, June 09, 2009

Moving Forward with Radiofrequency Rhizotomy

My doctor's appointment with the pain specialist the day after Memorial Day went well. I had a cervical medical branch block to find out how my neck and pain responded. It helped a lot. The relief was not long lasting or indefinite, but it was significant. I had no neck pain the first four days after the procedure and even after the neck pain returned it hasn't been nearly as bad as it was before the medical branch block.

Since the medial branch block procedure was successful the doctor scheduled me for radiofrequency rhizotomy (radiofrequency nerve ablation). I'll be going back for that procedure in a couple of weeks.

I feel much more confident about it now that I've done the first procedure. Becoming familiar with the procedure room and set up (they will be similar) makes me much less anxious about the next procedure. I think I can do this.

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Content by Diana E. Lee.

Monday, June 08, 2009

Misunderstanding Migraine: June 2009 Headache Blog Carnival

Welcome to the June 2009 Headache and Migraine Disease Blog Carnival.

The Headache & Migraine Disease Blog Carnival has been created to provide both headache patients and people who blog about headaches with opportunities to share ideas on topics of particular interest and importance to us.

For the June 2009 carnival I solicited submissions on the topic of "What people don't understand about migraines & about what it's like to live with them."

Please keep reading for this month's collection of posts.

James Cottrill presents a creative take on the topic with the information post Major Shift in Migraine Thought (Part 1) posted at the Headache and Migraine News Blog.

Megan Oltman shares a poem about telling others about chronic illness called Catching Up posted at the Free My Brain From Migraine Pain blog.

Stephanie presents Love Hurts posted at Head Wise Woman.

Sue presents Solid Walls Just Pretending posted at Inner Dorothy.

Andy presents Dancing For Rainbows posted at Against the 'Graine.

Jasmine presents Understanding Invisible Illnesses posted at Jasmine's Cove.

Rosalind Joffe presents 5 Things I Want You to Know about Working While Living with a Chronic Illness posted at Working with Chronic Illness.

We also have three great submissions this month that are outside the theme.

Kelli presents Are My Migraines My Own Fault posted at Kelli's Migraine Daily.

Emily presents Bad Headache Days 26 & 27 2009 posted at No Extended Warranty.

Mike presents TMS and Migraines posted at Brain Stimulant.

Submit your blog post to the July 2009 edition of the Headache and Migraine Disease Blog Carnival using our carnival submission form or by e-mailing your submissions to me directly. We won't have a theme for the July carnival. Instead, submit your favorite post from the past month. Entries are due by midnight on Friday, July 13, and the carnival will be posted right here at Somebody Heal Me on Monday, July 10.

Past posts and more information about the carnival can be found on our Headache Blog Carnival information page.

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Content by Diana E. Lee.

Friday, June 05, 2009

Last Call: June 2009 Headache Blog Carnival

Announcing last call for submissions to the June 2009 Headache & Migraine Disease Blog Carnival. The theme is: What people don't understand about migraines and what it's like to live with them.

Submissions are due by the end of the day today, Friday, June 5th.

Posts may be submitted through the form on the carnival website or directly to me by e-mail.

The carnival will be posted on Monday, June 8th right here at Somebody Heal Me.

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Content by Diana E. Lee.

Another Review of Migraine Memoir 'A Brain Wider Than the Sky'

I came across another review of A Brain Wider Than The Sky: A Migraine Diary by Andrew Levy, this one from Newsweek. In case you're still on the fence about getting your hands on a copy you might want to check it out.

Claudia Kalb on Finding Beauty in Pain: A Migraine Memoir

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Content by Diana E. Lee.

Thursday, June 04, 2009

Sign Up for 2009 National Headache Week Educational Webinars

In honor of National Headache Week, June 7 - 13, 2009, the National Headache Foundation invites you to participate in a series of web-based seminars about headache-related topics.

What’s New in Migraine Management: Covers current treatment options for migraine and ongoing research. Includes the latest advances in managing migraine. Participants will have a chance to participate in a question & answer session with the expert, Dr. Frederick Freitag.

Tuesday, June 9, 12:30 pm – 1:30 pm CT
Thursday, June 18, 12:30 pm – 1:30 pm CT
Thursday, June 25, 6:00 pm – 7:00 pm CT

Healthy Habits to Manage Your Migraine Throughout the Year: Covers basic information about migraine and healthy habits and tips to manage migraine. Treatment options are also addressed. Participants will have the opportunity to submit questions to the expert.

Tuesday, June 9, 5:00 pm – 6:00 pm CT with Dr. Grace Forde
Thursday, June 11, 11 am – 12 pm CT with Dr. Merle Diamond
Tuesday, June 16, 5:00 pm – 6:00 pm CT with Dr. Grace Forde

Understanding Migraine From Diagnosis to Treatment: Covers basic understanding of migraine, its impact on patients and families, migraine causes, diagnosis and treatment options. Participants will have a chance to participate in a question & answer session with the expert, Dr. Robert Kunkel.

Wednesday, June 10, 12:00 pm – 1:00 pm CT
Wednesday, June 17, 11:00 – 12:00 pm CT

You can sign up for these seminars by e-mailing the National Headache Foundation at NHF1970 AT headache DOT org. Include the program name and date in the subject line and your name, city and state in the body of the email. You will receive instructions via email with a toll-free number to call to participate.

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Content by Diana E. Lee.

Wednesday, June 03, 2009

New Migraine Drug Tezampanel in Trouble?

Ellen Schnakenberg at WEGO Health reports that pharmaceutical company TorreyPines Therapeutics has announced its intention to shut down and liquidate its assets.

TorreyPines has been developing a new type of migraine drug called Tezampanel, which is a glutamate reception inhibitor. One of the current theories about migraines involves the observation that people experiencing migraines have an excess of an amino acid known as glutamate. Glutamate naturally occurs in the brain and is essential for healthy people, but too much of it can lead to a number of diseases or conditions. Drugs like Tezampanel act to stop a migraine by blocking glutamate in the brain.

It remains unclear what will now happen to Tezampanel in the wake of TorreyPines' financial failure. Perhaps it will be sold to another pharmaceutical company. Hopefully it will not simply fall by the wayside and fade into obscurity.

Addex Pharmaceuticals also has a drug (ADX10059) in development that works on glutamate, so even if Tezampanel is lost, research in this area can be expected to continue.

Sources:
The End of Tezampanel? Say It Isn't So
TorreyPines Therapeutics to Liquidate
Glutamate: A New Key to Migraine Treatment?
TorreyPine Therapeutics: Tezampanel & NGX426
Addex Starts Phase IIb Trial of ADX10059 for Migraine Prevention
Addex Pharmaceuticals Pipeline

Related Posts:
AHS Meeting News: Research on New Medications

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Content by Diana E. Lee.

Tuesday, June 02, 2009

Inhaled DHE Levadex Effective at Treating Migraines

Levadex, an inhaled migraine treatment drug in development, has shown promise in relieving many of the symptoms commonly associated with migraine attacks.

Levadex, formerly known as MAP0004, is a new formulation of DHE (dihydroergotamine). Researchers said it has been shown more effective than placebo in treating the pain, sensitivity to light and sound and nausea experienced by migraineurs. It was also shown to be fast acting and long lasting.

Levadex could prove to be an important alternative to triptans for people who cannot take them.

DHE is currently available by IV in a clinic or hospital, by intramuscular injections that patients can self administer at home or a nasal spray called Migranal. Having a more accessible, user friendly delivery method that avoids the stomach available will likely be helpful to many migraineurs.

The company developing the medication, MAP Pharmaceuticals, declined to share when they might be applying for FDA approval.

Sources:
MAP Pharma Soars on Positive Migraine Drug Study
MAP Pharmaceuticals Phase 3 Trial of Levadex Migraine Product Candidate Meets All Four Primary Endpoints

Related posts:
Inhaled DHE Offers Advantages Over IV DHE

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Content by Diana E. Lee.

Monday, June 01, 2009

New Migraine Memoir: A Brain Wider Than The Sky by Andrew Levy

Time Magazine and the LA Times are both reporting on a new migraine memoir called A Brain Wider Than the Sky by Andrew Levy. The LA Times article features a short Q&A with the author while the Time piece is a traditional review.

A Brain Wider Than The Sky by Andrew Levy - Time

'A Brain Wider Than The Sky' Author Talks About Life With Migraines - LA Times

I'll be buying a copy this week and I'll report back with my thoughts. Has anyone read it yet? I'd love to hear your thoughts on it.

The title refers to a poem written by migraineur Emily Dickinson, which is why I've included a photo of her in this post.

You can buy the book at Amazon.com:

A Brain Wider Than the Sky: A Migraine Diary by Andrew Levy

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Content by Diana E. Lee.

WHAT I'M READING

Diana's bookshelf:

The Killer Angels

by Michael Shaara

I enjoyed the book, but kept finding myself being dragged down by all the minute details. I finally realized I could focus more on the characters than the tactics and battles and enjoy it more so that is exactly what I did. I have to imagin...

tagged: 2010, fiction, and historical-fiction

Absolute Friends

by John le Carré

tagged: 2010, fiction, and mystery

The Hound of the Baskervilles

by Arthur Conan Doyle

tagged: 2010, fiction, library, and mystery

Pages

Tuesday, June 30, 2009

Monday, June 29, 2009

Friday, June 26, 2009

Thursday, June 25, 2009

Wednesday, June 24, 2009

Tuesday, June 23, 2009

Monday, June 22, 2009

Thursday, June 18, 2009

Wednesday, June 17, 2009

Tuesday, June 16, 2009

Monday, June 15, 2009

Friday, June 12, 2009

Thursday, June 11, 2009

Wednesday, June 10, 2009

Tuesday, June 09, 2009

Monday, June 08, 2009

Friday, June 05, 2009

Thursday, June 04, 2009

Wednesday, June 03, 2009

Tuesday, June 02, 2009

Monday, June 01, 2009

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