Thursday, November 19, 2009

Patients for a Moment Carnival at Chronic Babe

The twelfth edition of the patient-centered blog carnival Patients for a Moment has been posted at Chronic Babe. Post topics include everything from whether pain is truly a disability to World Diabetes Day to how to live a more balanced life when you have chronic pain. There are many good submissions to read this time. Don't miss it!

Patients for a Moment Vol.1 , #12

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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.

Monday, November 16, 2009

Changing Chronic Pain Care in America

A committee of pain experts gathered by the Mayday Fund recently released a report about the state of treatment for people with chronic pain in the United States. The Mayday Fund Pain Report: A Call to Revolutionize Chronic Pain Care in America says chronic pain should be treated as a chronic illness and calls for health reforms and better education of treatment providers to enable them to properly diagnose and treat pain.

Mayday Fund Pain Report

Reading through the report left me with a few main conclusions. The report is absolutely correct when it says many chronic pain patients find themselves caught up in an endless search for adequate treatment. They see doctor after doctor and try treatment after treatment, but never receive care that adequately addresses their pain. Many of us can easily relate to this. Unfortunately, the report was researched and drafted by people who fit squarely within the traditional medical model. They do not necessarily understand the reality about pain medication, which is that it is not an acceptable long-term option for people with chronic pain. It causes serious problems for patients when taken long term, including constipation, dependency and the tendency to increase pain by stopping the body from producing its natural pain killers (endorphins). Tolerance is also a huge concern. As patients' tolerance increases doctors must prescribe stronger and stronger medications to give their patients any relief until people are so out of it they cannot function and, ultimately, are often in danger of overdosing on their medications despite taking them as prescribed.

I was disappointed to find none of the recommendations included anything about teaching patients skills for managing their chronic pain. When none of the interventions, treatments, surgeries or medications helps chronic pain patients, we must make sure they have help to learn some tools to help them live the best lives they can despite their extreme pain. Access to behavioral pain management programs like the one I'm participating in at The Lemons Center is essential for these people.

The report identified disparities of pain care for people of lower socioeconomic status and members of racial and ethnic minority groups. The report authors worry these disparities leave people with unrelenting pain that may change their nervous systems in a way that makes their pain permanent.

If you're intereted in seeing the recommendations and other information for yourself, download a PDF copy of the full report at:

Mayday Fund Pain Report

I'd be very interested in hearing your thoughts about the report.

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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.

Friday, November 13, 2009

LATHER Planting Seeds Gift Set Giveaway Winner

The winner of the LATHER Planting Seeds Gift Set is KellieS. Thanks to everyone who shared your experiences with using aromatherapy to cope with your pain. Enjoy your fantastic gift set, Kellie!

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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.

Thursday, November 12, 2009

Last Chance: LATHER Planting Seeds Gift Set Giveaway

Don't forget today is your last chance to enter the LATHER Planting Seeds Gift Set Giveaway. For more information about the giveaway and LATHER's pledge to give $5 from the sale of each gift set to the National Headache Foundation, please visit:

LATHER Giveaway: Planting Seeds Gift Set

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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.

Tuesday, November 10, 2009

Inflammation in Migraine Brains Identified By PET Imaging

Researchers have identified inflammation in the brain cells of migraine patients by examining their brains using positron emission tomography (PET), a noninvasive imaging technique that allows doctors to see our organs and tissues in 3D.

The only other way to examine the brain in this detail is by using brains of the deceased, so PET imaging provides a unique opportunity to examine the brains of living migraine patients.
It is hoped this information about inflammation of brain cells will give researchers more insight into the causes of migraine and other neurological disorders and help them develop better treatments. Researchers also hope this information might lead to an objective method of diagnosing migraines and assessing the effectiveness of migraine treatments.

Of importance, however, is that this study was conducted on rats using an animal model of migraine. While the information is still exciting, it may be some time before it can be applied to humans in any way that provides us with new methods of diagnosis and treatment.

Sources:
Molecular Imaging Pinpoints Inflammation in Brains of Migraine Patients
PET Scan

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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.

Monday, November 09, 2009

Migraine Triggers: November 09 Headache Blog Carnival

LinkLinkWelcome to the November 2009 Headache and Migraine Disease Blog Carnival.

The Headache & Migraine Disease Blog Carnival has been created to provide both headache patients and people who blog about headaches with opportunities to share ideas on topics of particular interest and importance to us.

The theme of the November carnival is "Strategies for identifying & minimizing migraine triggers."

Please keep reading for the November 2009 collection of posts.

I'd like to share a classic post from Somebody Heal Me on the topic of migraine triggers: AHS on "Headache Hygiene".

James Cottrill presents The Migraineur's Quick Guide to Reading Food Labels posted at Headache and Migraine News.

Emily presents Triggers vs. Symptoms posted at No Extended Warranty.

Submit your blog post to the December 2009 edition of the Headache and Migraine Disease Blog Carnival using our carnival submission form or by e-mailing your submissions to me by e-mail. The theme will be "Advice & experiences with reducing holiday season stress."
Entries are due by midnight on Friday, December 11, and the carnival will be posted at My Migraine Connection on Monday, December 14.

Past posts and more information about the carnival can be found on our Headache Blog Carnival information page.

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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.

Friday, November 06, 2009

Don't Forget About the LATHER Giveaway!

Don't forget about the LATHER Planting Seeds Gift Set giveaway!

Giveaway Time! LATHER Planting Seeds Gift Set to Support NHF

The LATHER Planting Seeds Gift Set makes a great holiday gift and $5 from the sale of each product goes to the National Headache Foundation to support headache research, awareness and outreach.

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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.

Last Call: November 2009 Headache Blog Carnival

Submissions for the November 2009 Headache & Migraine Disease Blog Carnival are due by midnight (the end of the day) today, Friday, November 6. Posts may be submitted through the form on the carnival website or directly to me by e-mail.

The theme is "
Strategies for identifying & minimizing migraine triggers."

The November carnival will be posted on Monday, November 9th right here at Somebody Heal Me.


For more information about the carnival visit this link: Headache & Migraine Blog Carnival.

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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.

Thursday, November 05, 2009

Patients for a Moment Blog Carnival: Eleventh Edition

The eleventh edition of the patient-centered blog carnival Patients for a Moment is posted at the Everything Changes Blog. This is good stuff, people. Check it out!

Patients for a Moment

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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.

Wednesday, November 04, 2009

Announcing November 2009 Headache Blog Carnival

The theme for the November 2009 Headache & Migraine Disease Blog Carnival is "Strategies for identifying & minimizing migraine triggers."

Submissions are due by midnight (the end of the day) on Friday, November 6.

Posts may be submitted through the form on the carnival website or directly to me by e-mail.

The November carnival will be posted on Monday, November 9th right here at Somebody Heal Me.


For more information about the carnival visit this link: Headache & Migraine Blog Carnival.

Please spread the word to any migraine or headache bloggers you know and consider posting an announcement to your own blog if you have one.

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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.

Pain Tolerance: How Your Behavior Decreases or Increases It

At the behavioral pain management program I'm participating in we spend an hour in a classroom setting in addition to an hour of group therapy / relaxation training and two hours of physical therapy. In class we've spent time learning about the differences between acute pain and chronic pain and have learned how to rate our pain, stress, fatigue and depression levels on a scale of 1-10 in order to determine how to approach our activity levels and decide whether we need to stop and use our tools based on our data. Last week we started to learn about the differences between pain level, pain tolerance and pain threshold. Just as there are factors that can decrease our tolerance to pain, there are also things that can increase our tolerance to pain. We often cannot control whether we have pain, but we can control how we react to our pain. If we're familiar with both sides of the tolerance coin we can better help ourselves cope with whatever our bodies throw at us.

These factors decrease pain tolerance:

1. fatigue
2. physical weakness
3. negative thoughts - I'm lazy, I'm a failure, I'm a bad wife/mother/daughter, etc.
4. negative emotions - angry, mad, sad, scared
5. long-term stress
6. pain medication

These factors increase pain tolerance:

1. rest
2. physical strength & conditioning
3. positive thoughts
4. positive emotions
5. minimizing stress
6. avoiding pain medication

Some of these ideas are incredibly controversial because they scare patients and challenge the typical medical model of how to treat pain. I didn't buy into some of them when I first started the program at The Lemons Center, especially the idea about reducing my pain medication consumption. I thought it was all about the judgment so many of us face as a result of our long-term use of narcotics. It's not.

The How to Cope with Pain Blog recently published an excellent piece on the use of opioid medications for pain. I highly recommend each of you read it to gain a greater understanding of the challenges associated with the long-term use of these medications for treatment of chronic pain. One issue is something called opioid-induced hyperalgesia, which means that opioid consumption increases your pain.

Medication for Pain Series: Opiates

I also challenge you to spend some time considering each of these points and taking an honest look at how you can improve each one in your own life. Are you playing a tape of negative thoughts in your mind? How can you challenge those thoughts? Are you depressed about your pain? How can you start to work through the negative emotions that depression brings with it? Are you moving your body or are you under the mistaken impression, as I was, that you cannot handle exercise because of your migraines and pain? I've had to start out very, very slowly, but I'm learning that I can do two hours of stretching and conditioning exercises a day. I have to pace myself and respect my limits, but I really can do it! I'll bet you can, too.

As always, please do not make changes to your medication without discussing it with your doctors first.

Sources:
Medication for Pain Series: Opiates
Opioid-Induced Hyperalgesia

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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.

Tuesday, November 03, 2009

October 2009 Pain Blog Carnival is Up

The October Pain Blog Carnival is up at the How to Cope with Pain Blog. Post topics include healthy eating, mindfulness-based stress reduction and doctor/patient relationships.

October Pain Blog Carnival

The How to Cope with Pain Blog will host the medical blog carnival Grand Rounds on November 24 and invites submissions of posts on any pain-related topic by November 22.

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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.

Monday, November 02, 2009

Good Friends Make All the Difference

Being this insanely tired is so totally worth it when it came about as a result of the best weekend I've had in ages. I spent the weekend out of town with friends and got the companionship and fun I've been desperate for.

On Friday afternoon I drove a few hours away to stay with a close friend and her family for the weekend. Friday evening we ate a delicious homemade meal of Sweet Potato Soup and chilled out on the sofa. Saturday I slept in and my friend and I went shopping while her baby took a nap at home with her husband. I even got one Christmas present taken care of. After watching some football we all took the baby trick-or-treating in the early evening, which was a blast. He caught on to the idea of taking candy and putting it into his basket and loved all the attention he got for looking so adorable in his giraffe costume. On Sunday we went to church and met my brother and another friend (my childhood best friend, no less!) afterward for lunch. We had the best time cracking up and gossiping. Everyone around our table must have thought we were totally nuts. It was awesome and totally rejuvenating.

All things considered my head cooperated with my plans. I had some significant pain, but I think the program at The Lemons Center is paying off already in helping me go ahead and do what I want and need to do in life without pushing myself too hard and overdoing it. I even did all my stretches from the physical therapy portion of the program while I was away. I'm quite proud of that.

It is such a gift to have the kind of friends you can totally be yourself around, even when the real you is ugly or sad or sick. I honestly don't know what I would do without my wonderful close friends. I may not have a ton of friends, but the ones I do have are the best friends anyone could ask for.

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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
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