I came across some really great articles relating to migraines, chronic pain and mental health in the past week. There's a lot of information packed in these links, but they are well worth exploring.
Migraines in Children are Often Overlooked - New York Times Well Blog
How Drug Companies Sell Psychiatrists on Their Drugs - Kevin MD - This article also discusses the ways the maker of Neurontin illegally marketed it for migraine patients.
Groups Press Congress to End Patients' Wait for Medicare - Kaiser Health News
5 Myths about Antidepressants - My Depression Connection
Resilience and Mindfulness: Thoughts From Two Masters - World of Psychology
Disability, Impact and Migraine - Alliance for Headache Disorders Advocacy (AHDA) HeadNotes Blog
Becoming an Empowered Patient - New York Times Well Blog
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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Tuesday, August 31, 2010
Monday, August 30, 2010
Reminder: All in My Head Giveaway
Don't forget to come enter the All in My Head book giveaway. I'm excited to tell you guys that thanks to Paula Kamen's generosity I'm able to give away nine books total! So you have a great chance of getting one.
All in My Head Giveaway
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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
All in My Head Giveaway
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
How to Treat a Migraine
In an effort to cover some of the more basic aspects of living with migraines I'd like to address how to treat a migraine attack. Many of us have lots of experience with waiting them out, losing hours and days of our lives and experiencing tremendous suffering. The good news is there are some better options out there for us.
Triptans
These medications have been designed for the express purpose of stopping a migraine attack. This makes them your best line of defense against an attack if you are able to take them. Examples of medications in this category are Relpax, Imitrex, Maxalt, etc. Many of these are available in orally disintegrating tablet, nasal spray and injection form, which can help you get the relief you need without having to keep a medication in your stomach.
Antinausea Medications
As their name suggests, these medications can help with the nausea and vomiting many migraineurs experience as a part of their attacks. Examples of medications in this category include Phenergan, Reglan and Zofran. Zofran comes in an orally disintegrating tablet, which can be especially helpful when you are nauseated.
Ergotamines
These medicines were what was available before triptans came on the market. They are helpful for some people, especially as an option for those who cannot take triptans because of other health issues. In addition to being available by IV or intermuscular injection there is a nasal spray called Migranal that provides an easy way to utilize this option.
Pain Medication
It is okay to take over the counter medications like Tylenol, Advil, Aleve, etc. once in a while if it helps with the pain. Unfortunately these often do not help someone with a migraine and they can also cause more problems by setting your body into a pattern of repeating migraine attacks.
In addition to over the counter medications there are many prescription options available. A candid conversation with your doctor about what might be appropriate for your situation is a good idea. It can take some trial and error to see what works well for you and what causes you intolerable side effects, but can be worth it to find something that helps you function when you experience a migraine attack.
Alternative/Practical Remedies
Coping Skills
To be able to call upon any of these coping techniques when you are experiencing an attack you must practice them regularly whether you are feeling okay or not.
These are some of the resources I recommend:
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Triptans
These medications have been designed for the express purpose of stopping a migraine attack. This makes them your best line of defense against an attack if you are able to take them. Examples of medications in this category are Relpax, Imitrex, Maxalt, etc. Many of these are available in orally disintegrating tablet, nasal spray and injection form, which can help you get the relief you need without having to keep a medication in your stomach.
Antinausea Medications
As their name suggests, these medications can help with the nausea and vomiting many migraineurs experience as a part of their attacks. Examples of medications in this category include Phenergan, Reglan and Zofran. Zofran comes in an orally disintegrating tablet, which can be especially helpful when you are nauseated.
Ergotamines
These medicines were what was available before triptans came on the market. They are helpful for some people, especially as an option for those who cannot take triptans because of other health issues. In addition to being available by IV or intermuscular injection there is a nasal spray called Migranal that provides an easy way to utilize this option.
Pain Medication
It is okay to take over the counter medications like Tylenol, Advil, Aleve, etc. once in a while if it helps with the pain. Unfortunately these often do not help someone with a migraine and they can also cause more problems by setting your body into a pattern of repeating migraine attacks.
In addition to over the counter medications there are many prescription options available. A candid conversation with your doctor about what might be appropriate for your situation is a good idea. It can take some trial and error to see what works well for you and what causes you intolerable side effects, but can be worth it to find something that helps you function when you experience a migraine attack.
Alternative/Practical Remedies
- aromatherapy - Buying your own essential oils and blending them with a carrier oil is a lovely way to soothe yourself during an attack. I find a lavender & peppermint blend especially helpful, but experiment and see what works for you. Some people can't stand one or both of these scents and even find they make them feel worse during an attack. Many companies offer lovely products that require no blending or mixing. I especially like the Origins Peace of Mind line. It's subtle and soothing.
- acupressure - Applying gentle pressure to certain spots on your body can help relief the pain of a migraine attack. (How to Use Acupressure Points for Migraines)
- hydration - Drinking plenty of water when you are able to can help your body recover faster.
- a quiet, private, dark room
- eye masks
- earplugs
Coping Skills
To be able to call upon any of these coping techniques when you are experiencing an attack you must practice them regularly whether you are feeling okay or not.
- mindfulness
- relaxation breathing
- guided relaxation
These are some of the resources I recommend:
- Break Through Pain by Shinzen Young
- Mindfulness Meditation for Pain Relief by Jon Kabat-Zinn
- Full Catastrophe Living by Jon Kabat-Zinn
- Articles by Sharon Salzberg
- Tara Brach's Podcast
- Mindfulness Meditation Videos
- Meditation Station Podcast by Stin Hansen
- Meditation - Beliefnet
- Mindfulness in Plain English
- Practicing Focused Meditation
- Overcoming Stress & Illness Podcast
- A Quiet Mind Podcast
- Tranquility du Jour Podcast
- Minding Mindfulness - World of Psychology
- Yoga & Meditation - Yoga Journal
- Dharma Seed
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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Friday, August 27, 2010
Book Giveaway: All in My Head
All in My Head: An Epic Quest to Cure an Unrelenting, Totally Unreasonable, and Only Slightly Enlightening Headache is Paula Kamen's memoir about the process of trying to get treatment and learning to live with a constant headache. It's funny, poignant and sometimes hits so close to home it takes your breath away. Suffice it to say, it's a must read for someone living with migraines or other types of headaches. Reading this book was the first time I realized there were other people out there like me. It felt wonderful and scary all at the same time. But mostly wonderful and comforting.
To enter this giveaway you have a few options. You can earn as many chances as you like by doing all or some of these. You need to add a comment for each option you complete so I know to count each of your chances in the giveaway.
(1) "Like" Somebody Heal Me on Facebook: Somebody Heal Me Facebook Page
(2) Post a comment to this post about why you'd like to receive this book or sharing the headache/migraine books you've read and liked.
(3) Tweet about a favorite Somebody Heal Me post. Use @somebodyhealme in your Tweet so I can verify that you did it.
(4) Follow Somebody Heal Me with Google Friend Connect (in the left column).
(5) Sign up for the monthly Somebody Heal Me newsletter.
(6) Subscribe to the Somebody Heal Me Feed.
The contest will end on Friday, September 10, 2010 at midnight Central time. Don't forget to leave a comment for each option telling me you've completed it so you get credit. Please make sure to leave an e-mail address in your comments that I can use to contact the winner. If I don't hear back from the winner within 72 hours of contacting him/her I will go on to the second place winner. Good luck!
(Disclosure: I paid for this book with my own money. I'm not receiving anything for doing this giveaway.)
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
To enter this giveaway you have a few options. You can earn as many chances as you like by doing all or some of these. You need to add a comment for each option you complete so I know to count each of your chances in the giveaway.
(1) "Like" Somebody Heal Me on Facebook: Somebody Heal Me Facebook Page
(2) Post a comment to this post about why you'd like to receive this book or sharing the headache/migraine books you've read and liked.
(3) Tweet about a favorite Somebody Heal Me post. Use @somebodyhealme in your Tweet so I can verify that you did it.
(4) Follow Somebody Heal Me with Google Friend Connect (in the left column).
(5) Sign up for the monthly Somebody Heal Me newsletter.
(6) Subscribe to the Somebody Heal Me Feed.
The contest will end on Friday, September 10, 2010 at midnight Central time. Don't forget to leave a comment for each option telling me you've completed it so you get credit. Please make sure to leave an e-mail address in your comments that I can use to contact the winner. If I don't hear back from the winner within 72 hours of contacting him/her I will go on to the second place winner. Good luck!
(Disclosure: I paid for this book with my own money. I'm not receiving anything for doing this giveaway.)
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Thursday, August 26, 2010
Twitter Migraine Chat Reminder
Please don't forget to join us for the Twitter Migraine Chat tonight and every Thursday night at 8 pm CT. Anyone and everyone living with or affected by migraine is welcome. Hope to see you there!
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Percy Harvin's Situation Exposes Burden of Chronic Migraines
Minnesota Vikings wide receiver Percy Harvin has been struggling with chronic migraines. If you don't follow football you may not have heard of him. But let me assure you he is a high profile player in the National Football League and an important component of the Minnesota Vikings' offense. Harvin has dealt with migraines since childhood (like me), but almost no one knew about them until last season when they started taking him away from his job playing for his team. Fortunately things are finally looking up for him.
He wound up in the hospital a few weeks ago after collapsing with what has been described as an especially awful migraine attack during practice. He was released from the hospital the next day. He came to practice that same day in street clothes, but did not accompany the team to their preseason game in San Francisco. He practiced in full gear at the public portion of the Vikings practice this past Wednesday, but reports said he mostly stood on the sideline. Vikings coach Brad Childress told the media Harvin would not participate in practices or games until his doctors had completed their testing.
Kevin Seifert wrote an excellent article on ESPN.com about how the migraines have affected Harvin and describing all the ways he has sought treatment, making it clear he tried hard to get better. I was very impressed with Seifert's research because it seems as though many people assume those of us with chronic migraines just haven't tried hard enough to get better. This is not the case with Harvin just as it is not the case with the rest of us. You can read Seifert's article here: Migraines Now Affecting Harvin's Career.
Nancy Harris Bonk wrote a great article about Harvin's situation with his chronic migraines at My Migraine Connection: Percy Harvin: Famous Migraineur. It's another great read. Her article goes back to his childhood and describes his journey to the NFL, as well as his experiences with migraine disease.
On Saturday he was able to play in the Vikings' preseason game against Seattle. After the game Harvin said his doctors found what they believe to be the primary cause of his migraine attacks during testing the day before. Harvin is optimistic he will not experience attacks with the same frequency. I hope he is right.
No one knows for sure what his career will look like from now on. Knowing how hard it has been to have my career taken away by chronic migraines, I feel for him. I hope the notoriety of a high profile chronic migraine sufferer will help increase understanding of the burden of this disease, but no one should have to live like this.
Good luck, Percy. All of your fellow migraineurs are out here pulling for you.
Sources:
Percy Harvin Practicing for First Time Since Collapse
Harvin Returns to Practice
Migraines Now Affecting Harvin's Career
Percy Harvin: Famous Migraineur
Harvin: I Think Migraines Are Behind Me
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
He wound up in the hospital a few weeks ago after collapsing with what has been described as an especially awful migraine attack during practice. He was released from the hospital the next day. He came to practice that same day in street clothes, but did not accompany the team to their preseason game in San Francisco. He practiced in full gear at the public portion of the Vikings practice this past Wednesday, but reports said he mostly stood on the sideline. Vikings coach Brad Childress told the media Harvin would not participate in practices or games until his doctors had completed their testing.
Kevin Seifert wrote an excellent article on ESPN.com about how the migraines have affected Harvin and describing all the ways he has sought treatment, making it clear he tried hard to get better. I was very impressed with Seifert's research because it seems as though many people assume those of us with chronic migraines just haven't tried hard enough to get better. This is not the case with Harvin just as it is not the case with the rest of us. You can read Seifert's article here: Migraines Now Affecting Harvin's Career.
Nancy Harris Bonk wrote a great article about Harvin's situation with his chronic migraines at My Migraine Connection: Percy Harvin: Famous Migraineur. It's another great read. Her article goes back to his childhood and describes his journey to the NFL, as well as his experiences with migraine disease.
On Saturday he was able to play in the Vikings' preseason game against Seattle. After the game Harvin said his doctors found what they believe to be the primary cause of his migraine attacks during testing the day before. Harvin is optimistic he will not experience attacks with the same frequency. I hope he is right.
No one knows for sure what his career will look like from now on. Knowing how hard it has been to have my career taken away by chronic migraines, I feel for him. I hope the notoriety of a high profile chronic migraine sufferer will help increase understanding of the burden of this disease, but no one should have to live like this.
Good luck, Percy. All of your fellow migraineurs are out here pulling for you.
Sources:
Percy Harvin Practicing for First Time Since Collapse
Harvin Returns to Practice
Migraines Now Affecting Harvin's Career
Percy Harvin: Famous Migraineur
Harvin: I Think Migraines Are Behind Me
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Somebody Heal Me Wordle
Back when I first learned about Wordle I entered the URL of this blog to see what came up. It was cool and gave me good insight into what I was really writing about whether I realized it or not. Tonight I got the desire to do it again and see what it comes up with now. Here is the result:
I'm happy to discover so many of the words are factual or positive. I don't want to focus completely on how hard things are. I don't want to ignore the struggles, either, but I want to try to maintain a focus on what we can do to cope rather than on everything I've lost and suffered.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
![]() |
| From Somebody Heal Me |
I'm happy to discover so many of the words are factual or positive. I don't want to focus completely on how hard things are. I don't want to ignore the struggles, either, but I want to try to maintain a focus on what we can do to cope rather than on everything I've lost and suffered.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Wednesday, August 25, 2010
BlogHer $100 Question: What is Your Biggest Fear?

Come answer my question on BlogHer for a chance to win $100.
What is Your Biggest Fear?
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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Check Out the Pain and Chronic Babe Carnivals
There are new carnival editions at How to Cope with Pain and Chronic Babe. As always, great stuff there.
August 2010 Pain Blog Carnival
Chronic Babe Carnival #11: Arts & Crafts
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
August 2010 Pain Blog Carnival
Chronic Babe Carnival #11: Arts & Crafts
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Announcing September Headache & Migraine Carnival
The theme of the September 2010 Headache & Migraine Disease Blog Carnival carnival will be "Students and headache disorders - How have migraines & headaches affected your schooling? How has a headache disorder affected your school age child? How did you cope with balancing school and headaches or migraines?" As always, feel free to interpret this topic however you like. Entries are due by midnight (the end of the day) on Friday, September 10, 2010. The carnival will be published right here at Somebody Heal Me on Monday, September 13, 2010.
Feel free to post comments or contact me to ask any questions you might have. Please spread the word to any migraine or headache, pain or chronic illness bloggers you know and consider posting an announcement on your own blog if you have one.
For more information about the carnival please visit the main carnival page: Headache & Migraine Disease Blog Carnival.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Tuesday, August 24, 2010
August 24: Recommended Reading
These are some articles I've been reading recently. I think you'll find them informative and interesting.
Study: Chronic Pain May Be Genetic and Controllable - Israeli researchers believe they may have found the gene responsible for chronic pain that results from nerve damage.
Living with the Aches that Won't Go Away - The New York Times review of Melaine Thurnstrom's new book The Pain Chronicles.
Mind-Body-Mood Advisor: Rewiring Your Brain for Health and Happiness - Suggestions for using mindfulness meditation in your day to day life. Mindfulness can help you cope with physical and emotional pain. I'm a big fan.
Migraines Now Affecting Harvin's Career - ESPN did the best job of any news outlet I've seen of gathering factual evidence about the burden of chronic migraines and not making light of NFL player Percy Harvin's life with them.
'Pain Chronicles': Understanding Pain as An Illness - Melaine Thurnstrom was a guest on NPR's Talk of the Nation to discuss chronic pain and her new book "The Pain Chronicles."
Why Can't Medicine Be More Like Car Talk? - Patient Advocate Trisha Torrey wrote a really smart, funny article about how medical care could improve by closer resembling the beloved public radio program Car Talk. It's a must read.
What have you been reading that you'd like to share? Please post your links in the comments.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Study: Chronic Pain May Be Genetic and Controllable - Israeli researchers believe they may have found the gene responsible for chronic pain that results from nerve damage.
Living with the Aches that Won't Go Away - The New York Times review of Melaine Thurnstrom's new book The Pain Chronicles.
Mind-Body-Mood Advisor: Rewiring Your Brain for Health and Happiness - Suggestions for using mindfulness meditation in your day to day life. Mindfulness can help you cope with physical and emotional pain. I'm a big fan.
Migraines Now Affecting Harvin's Career - ESPN did the best job of any news outlet I've seen of gathering factual evidence about the burden of chronic migraines and not making light of NFL player Percy Harvin's life with them.
'Pain Chronicles': Understanding Pain as An Illness - Melaine Thurnstrom was a guest on NPR's Talk of the Nation to discuss chronic pain and her new book "The Pain Chronicles."
Why Can't Medicine Be More Like Car Talk? - Patient Advocate Trisha Torrey wrote a really smart, funny article about how medical care could improve by closer resembling the beloved public radio program Car Talk. It's a must read.
What have you been reading that you'd like to share? Please post your links in the comments.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Monday, August 23, 2010
Medicare Prescription Update
Things are looking up a bit with respect to my Medicare Part D situation, which I wrote about recently: Medicare Donut Hole. I've received a ton of good advice from you guys and I'm exploring those options, including getting help from the various drug companies that have programs.
I have coverage for my generic meds through my Medicare Part D plan, so ideally it should cover a significant portion of my generic Imitrex StatDose. My local neurologist always has samples of Zomig Nasal Spray to give away so I'm going to be more diligent about asking for them. I picked up some last week so I'm in good shape right now. Almost everything else I take is a generic, so I should be in good shape there.
That leaves me with two brand name drugs for which there is no generic available: Januvia and Vimpat. The Januvia is for my diabetes and PCOS. The Vimpat is for migraine prevention. If I still don't get any results with Vimpat in the next month or so I'll probably go off it. I need to discuss that with my doctor first, though. I also need to ask if they can send me some more samples. I want to stay on Januvia because it has been so helpful for me. It costs $200 a month, which is murder on our budget, but I think we'll be able to make it work.
In looking at my situation with a more critical eye things don't seem as bad as I thought they were. The money I'm paying out for my various Medicare plans has stretched our budget, but the prescription part seems like it will be far more manageable than I thought it would be when I was in panic mode.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
I have coverage for my generic meds through my Medicare Part D plan, so ideally it should cover a significant portion of my generic Imitrex StatDose. My local neurologist always has samples of Zomig Nasal Spray to give away so I'm going to be more diligent about asking for them. I picked up some last week so I'm in good shape right now. Almost everything else I take is a generic, so I should be in good shape there.
That leaves me with two brand name drugs for which there is no generic available: Januvia and Vimpat. The Januvia is for my diabetes and PCOS. The Vimpat is for migraine prevention. If I still don't get any results with Vimpat in the next month or so I'll probably go off it. I need to discuss that with my doctor first, though. I also need to ask if they can send me some more samples. I want to stay on Januvia because it has been so helpful for me. It costs $200 a month, which is murder on our budget, but I think we'll be able to make it work.
In looking at my situation with a more critical eye things don't seem as bad as I thought they were. The money I'm paying out for my various Medicare plans has stretched our budget, but the prescription part seems like it will be far more manageable than I thought it would be when I was in panic mode.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Friday, August 20, 2010
I Might Look Good But I Feel Horrible
What are you supposed to say when some well meaning person says you look great even though you just said your chronic pain has you feeling as bad as ever? Usually I mumble something along the lines of, "Oh, well, thank you," and give a sheepish, shy sort of look. It's awkward. This is one of the most uncomfortable aspects of having an invisible chronic illness. I've adjusted to the pain, vomiting, fatigue and so on. Somehow this never gets easier.
I know the people who say it mean it as a compliment. They don't mean to be insensitive. I also know they hope the fact I look like I'm feeling better means I really am. No one who loves you wants you to feel horrible. But I'm not feeling better and somehow I'm okay with that. After seven years you have to find a way to be okay with it or you'd blow your brains out. Am I right?
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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
I know the people who say it mean it as a compliment. They don't mean to be insensitive. I also know they hope the fact I look like I'm feeling better means I really am. No one who loves you wants you to feel horrible. But I'm not feeling better and somehow I'm okay with that. After seven years you have to find a way to be okay with it or you'd blow your brains out. Am I right?
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Wednesday, August 18, 2010
Mild Traumatic Brain Injuries: Soldiers, Roadside Bombs & Military Policy
Use of the deforestation chemical Agent Orange in Vietnam opened our eyes to new types of injuries among war veterans when they began to suffer mysterious ailments that were traced back to exposure to this substance. During our current war in Iraq there has been a growing realization that exposure to roadside bombs and IEDs (improvised explosive devices) are causing mild traumatic brain injuries in our soldiers.
Traumatic brain injury has been referred to as the signature wound of this war. It may seem as though service members didn't suffer any ill effects from explosions if they don't have any outward signs of injury. But many of them experience troubling symptoms like confusion, migraines and headaches, mental fog, dizziness, vertigo, delayed reaction time and memory loss. Most people exposed to explosions who experience these symptoms will fully recover within a few weeks. But as many as 5 to 15% never recover and continue to experience these debilitating symptoms for years leaving them unable to continue their military service, fully interact with their families or hold a job. (ProPublica offers a detailed explanation of these wounds complete with graphics on their website: Traumatic Brain Injury in Theater: When Blasts Damage the Brain.)
Doctors typically diagnose a moderate or severe brain injury in someone who is unconscious for 30 minutes or longer. MRIs of their brains will show damage, which makes diagnosis fairly straightforward. In contrast mild traumatic brain injuries, the kind experienced by soldiers exposed to IEDs, are difficult to diagnose. They do not usually show up in any kind of testing. Unless doctors know to ask a soldier about symptoms and monitor the soldier after the incident, it is easy for these injuries to fall through the cracks. Soldiers may not realize their symptoms are attributable to a brain injury and doctors may not realize the patient has one since the injury is so difficult to diagnose.
The military's handling of soldiers with these injuries has been a major source of controversy. NPR and ProPublica started a joint investigation of the frequency, diagnosis and treatment of brain injuries among soldiers to find out what was going on and what might need to change to adequately serve the needs of the active service members and veterans living with these injuries. As a result of their findings Congress called senior military leaders to a hearing of the Senate Armed Services Committee to discuss the huge numbers of soldiers returning with serious brain injuries and to explain why so many soldiers said they had not been able to get treatment for brain injuries they suffered in the line of duty. A group of Congressional leaders also asked them to address reports that Fort Bliss in Texas, the third largest base in the United States, was doing an especially inadequate job of diagnosing and caring for soldiers who have experienced brain injuries.
Military leaders are making a concerted efforts to adopt new policies that better serve the solider affected by mild traumatic brain injuries. All soldiers involved in a blast or exposed to head trauma will be evaluated. This is intended to avoid the inherent problems of relying on self-reporting of these injuries. Any soldier who is within 50 yards of a blast is now required to take a 24 hour rest period before returning to the field. The new policy also requires soldiers who experience three or more mild traumatic brain injuries to have a complete neurological exam before returning to the field.
In addition to the more practical changes, the military is also instituting better practices for tracking brain injuries. The new policy requires the establishment of a database to track each injury and the details surrounding it. This is intended to help with the problem of a soldier's medical record not containing anything about the mild traumatic brain injury, which has made it difficult for soldiers to get the medical treatment they need when they are still experiencing symptoms months or years later.
In another significant step to provide the best care for soldiers living with mild traumatic brain injuries, the Department of Defense and Department of Veterans Affairs have teamed up to open a national treatment center on the National Navy Medical Center grounds in Bethesda, Maryland. Active duty soldiers from all across the country who are not recovering through current therapies will come to the center for treatment. They and their families will spend two weeks at the facility for multidisciplinary assessment and care. They will return home with a new treatment plan and will continue to be followed by the center. The center will also research traumatic brain injuries, develop new treatments and learn about how the chronic stress of combat affects the brain. They are also working to develop an objective measure of mild traumatic brain injury using neuroimaging.
Sources:
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Traumatic brain injury has been referred to as the signature wound of this war. It may seem as though service members didn't suffer any ill effects from explosions if they don't have any outward signs of injury. But many of them experience troubling symptoms like confusion, migraines and headaches, mental fog, dizziness, vertigo, delayed reaction time and memory loss. Most people exposed to explosions who experience these symptoms will fully recover within a few weeks. But as many as 5 to 15% never recover and continue to experience these debilitating symptoms for years leaving them unable to continue their military service, fully interact with their families or hold a job. (ProPublica offers a detailed explanation of these wounds complete with graphics on their website: Traumatic Brain Injury in Theater: When Blasts Damage the Brain.)
Doctors typically diagnose a moderate or severe brain injury in someone who is unconscious for 30 minutes or longer. MRIs of their brains will show damage, which makes diagnosis fairly straightforward. In contrast mild traumatic brain injuries, the kind experienced by soldiers exposed to IEDs, are difficult to diagnose. They do not usually show up in any kind of testing. Unless doctors know to ask a soldier about symptoms and monitor the soldier after the incident, it is easy for these injuries to fall through the cracks. Soldiers may not realize their symptoms are attributable to a brain injury and doctors may not realize the patient has one since the injury is so difficult to diagnose.
The military's handling of soldiers with these injuries has been a major source of controversy. NPR and ProPublica started a joint investigation of the frequency, diagnosis and treatment of brain injuries among soldiers to find out what was going on and what might need to change to adequately serve the needs of the active service members and veterans living with these injuries. As a result of their findings Congress called senior military leaders to a hearing of the Senate Armed Services Committee to discuss the huge numbers of soldiers returning with serious brain injuries and to explain why so many soldiers said they had not been able to get treatment for brain injuries they suffered in the line of duty. A group of Congressional leaders also asked them to address reports that Fort Bliss in Texas, the third largest base in the United States, was doing an especially inadequate job of diagnosing and caring for soldiers who have experienced brain injuries.
Military leaders are making a concerted efforts to adopt new policies that better serve the solider affected by mild traumatic brain injuries. All soldiers involved in a blast or exposed to head trauma will be evaluated. This is intended to avoid the inherent problems of relying on self-reporting of these injuries. Any soldier who is within 50 yards of a blast is now required to take a 24 hour rest period before returning to the field. The new policy also requires soldiers who experience three or more mild traumatic brain injuries to have a complete neurological exam before returning to the field.
In addition to the more practical changes, the military is also instituting better practices for tracking brain injuries. The new policy requires the establishment of a database to track each injury and the details surrounding it. This is intended to help with the problem of a soldier's medical record not containing anything about the mild traumatic brain injury, which has made it difficult for soldiers to get the medical treatment they need when they are still experiencing symptoms months or years later.
In another significant step to provide the best care for soldiers living with mild traumatic brain injuries, the Department of Defense and Department of Veterans Affairs have teamed up to open a national treatment center on the National Navy Medical Center grounds in Bethesda, Maryland. Active duty soldiers from all across the country who are not recovering through current therapies will come to the center for treatment. They and their families will spend two weeks at the facility for multidisciplinary assessment and care. They will return home with a new treatment plan and will continue to be followed by the center. The center will also research traumatic brain injuries, develop new treatments and learn about how the chronic stress of combat affects the brain. They are also working to develop an objective measure of mild traumatic brain injury using neuroimaging.
Sources:
- Military Still Failing to Diagnose, Treat Brain Injuries
- Pentagon Issues New Policy for Diagnosing and Treating Brain Injuries
- Task Force Seeks Brain Injury Studies
- Congress Demands Answers on Brain Injury Care at Texas Base
- Congress Questions Military Leaders on Suicides, Traumatic Brain Injury
- Top Officer Says Military Takes Brain Injuries 'Extremely Seriously'
- New National Treatment Center for Soldiers with TBI and PTSD Opens
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Tuesday, August 17, 2010
Reminder: Vote to Give Children Clean Drinking Water
At BlogHer '10 I learned about a fantastic program to give children around the world clean drinking water. For each of your votes P&G will provide clean, safe drinking water to people who would not otherwise have it.
Visit this link to vote: http://ow.ly/2qQ6R
Could there be any easier way to support such a worthwhile cause? I certainly can't think of one. You are allowed to vote once a day, so I encourage you to do so to ensure we give as much safe water as possible to people who so badly need it.
I will send out a reminder by email every day to people who would like to be reminded. If you'd like to be added to my list please send me an email at somebodyhealme@dianalee.net and I will add you. You will be able to unsubscribe any time by sending me an email at the same address.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Visit this link to vote: http://ow.ly/2qQ6R
Could there be any easier way to support such a worthwhile cause? I certainly can't think of one. You are allowed to vote once a day, so I encourage you to do so to ensure we give as much safe water as possible to people who so badly need it.
I will send out a reminder by email every day to people who would like to be reminded. If you'd like to be added to my list please send me an email at somebodyhealme@dianalee.net and I will add you. You will be able to unsubscribe any time by sending me an email at the same address.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Monday, August 16, 2010
Suicide, Chronic Pain, Real People
1-800-273-TALK
National Suicide Depression Hotline
I encountered an uncommon situation Friday morning when I was reading blogs: a blogger's suicide attempt. I subscribe to every migraine blog I can find, but I'm not as connected with some of the bloggers as I am with others. One of the bloggers I know least well posted something vague saying she had taken too many sleeping pills. It was followed by a relatively coherent, well thought out suicide note. She updated later that night that a family member learned of her distress and took her for treatment. I want to get that out of the way up front because this isn't the kind of story to tell in a suspenseful way.
As I reflected on the situation all that day I just kept hoping it was a cry for help rather than the real thing. I didn't have any way to contact her or even know her name. I had no choice but to wait and hope. I prayed and asked others to pray. I knew people love her and would miss her. I also knew she was suffering. That I know very well. But I also kept thinking how much good there is in life despite all of that. Someone choosing suicide obviously does not see things that way. The brain of a person attempting suicide clearly does not weigh the pros and cons and make a reasoned out decision the way the rest of us do. It has already decided it has no other options. If you are in that place tell someone. Tell a doctor. Tell your therapist. Tell your best friend, your spouse or your cousin. Call 1-800-273-TALK, the National Suicide Depression Hotline. Of course you feel you have no choices. Please trust me when I say you do. You don't have to believe it right now. Just give a mental health professional a chance to help you see it. You don't have to fight this alone.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
National Suicide Depression Hotline
I encountered an uncommon situation Friday morning when I was reading blogs: a blogger's suicide attempt. I subscribe to every migraine blog I can find, but I'm not as connected with some of the bloggers as I am with others. One of the bloggers I know least well posted something vague saying she had taken too many sleeping pills. It was followed by a relatively coherent, well thought out suicide note. She updated later that night that a family member learned of her distress and took her for treatment. I want to get that out of the way up front because this isn't the kind of story to tell in a suspenseful way.
As I reflected on the situation all that day I just kept hoping it was a cry for help rather than the real thing. I didn't have any way to contact her or even know her name. I had no choice but to wait and hope. I prayed and asked others to pray. I knew people love her and would miss her. I also knew she was suffering. That I know very well. But I also kept thinking how much good there is in life despite all of that. Someone choosing suicide obviously does not see things that way. The brain of a person attempting suicide clearly does not weigh the pros and cons and make a reasoned out decision the way the rest of us do. It has already decided it has no other options. If you are in that place tell someone. Tell a doctor. Tell your therapist. Tell your best friend, your spouse or your cousin. Call 1-800-273-TALK, the National Suicide Depression Hotline. Of course you feel you have no choices. Please trust me when I say you do. You don't have to believe it right now. Just give a mental health professional a chance to help you see it. You don't have to fight this alone.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Friday, August 13, 2010
Medicare Donut Hole: I'm Dealing with It Now
Last week I found out I had entered the Medicare donut hole. I'm incredibly scared. I can't possibly afford to pay $350+ for my Imitrex. And that's generic. Where do they think people come up with that kind of money? I understand compromises had to be made to get the prescription benefit passed at all, but this is a huge problem for people like me. It's as if no one considered the somewhat low income elderly or disabled people who rely on Medicare for their health care. Obviously the poorest of the poor will likely qualify for Medicaid, but what about the rest of us in the middle class who are struggling to pay for all this?
In case you don't already know, the way this complicated situation works is that in addition to a deductible, Medicare beneficiaries pay 25% of their drug costs until they reach $2,830 of spending. At that point they must pay out of pocket until they reach $6,440 of spending. After passing $6,440 of prescription spending they pay only 5% of their costs until the end of the year. This compromise was intended to provide a moderate level of coverage for Medicare beneficiaries, then pick back up when they reach a catastrophic level of need. The big question is where people like me are supposed to come up with the $3,610 they will potentially need to spend because they are receiving no coverage for their medications.
Fortunately the health care reform legislation passed earlier this year will begin to close the so-called donut hole over the next few years. Starting in 2011 Medicare beneficiaries will receive a 50% discount on name brand drugs and a 7% discount on generics. By 2020 they (we) will end up receiving a 75% discount on their prescription medications, which effectively eliminates the donut hole. It will be slow going getting to that point, but it's also important to remember that until the 2003 Medicare Modernization Act went into effect in 2006 there was no prescription coverage at all for Medicare recipients. I just don't know how I'm going to make it work this year. It's scary.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
In case you don't already know, the way this complicated situation works is that in addition to a deductible, Medicare beneficiaries pay 25% of their drug costs until they reach $2,830 of spending. At that point they must pay out of pocket until they reach $6,440 of spending. After passing $6,440 of prescription spending they pay only 5% of their costs until the end of the year. This compromise was intended to provide a moderate level of coverage for Medicare beneficiaries, then pick back up when they reach a catastrophic level of need. The big question is where people like me are supposed to come up with the $3,610 they will potentially need to spend because they are receiving no coverage for their medications.
Fortunately the health care reform legislation passed earlier this year will begin to close the so-called donut hole over the next few years. Starting in 2011 Medicare beneficiaries will receive a 50% discount on name brand drugs and a 7% discount on generics. By 2020 they (we) will end up receiving a 75% discount on their prescription medications, which effectively eliminates the donut hole. It will be slow going getting to that point, but it's also important to remember that until the 2003 Medicare Modernization Act went into effect in 2006 there was no prescription coverage at all for Medicare recipients. I just don't know how I'm going to make it work this year. It's scary.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Wednesday, August 11, 2010
Thursday Twitter Chat Reminder
Please don't forget about the weekly Twitter Migraine Chat tomorrow night at 8 pm central time. We use the hashtag #migrainechat. Anyone is welcome!
Let me know if you have questions. Hope to see you there.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Let me know if you have questions. Hope to see you there.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Support Clean Drinking Water
At BlogHer '10 I randomly stopped by part of the huge P&G display space on the Expo floor. I am familiar with the products they make. We use and really like some of them in our household. But I highly doubted I would blog about anything in their displays and didn't intend to spend any time there. Fortunately I stopped by anyway and began a conversation with a really nice man who told me about the P&G Children's Safe Drinking Water Program and their contest to encourage bloggers and their readers to help P&G give clean drinking water to people all over the world who need it. They are also offering a trip to Africa to the blogger who gets the most votes. I was quickly sold on participating.
I talk a lot about drinking plenty of water on this blog. Not only is it important for our health generally, but it is important for migraineurs specifically. It helps us prevent migraines when we stay hydrated and it helps us treat and cope with our migraines when we drink plenty of water during an attack. Yet I have never had to talk about where to find safe drinking water in all the times I have talked about consuming plenty of water. We tend to take clean drinking water for granted in the United States. Not to say that we don't have problems with poverty in our country because we do, but even the poorest of the poor in our country have access to an abundance of safe, clean drinking water. In many places in the world this is not true. Can you imagine how different life would be if we had to walk tens of miles to get clean water? How would this change our lives? We think we're tired at the end of the day now, but we honestly don't know from tired.
According to P&G:
Please vote through the widget at the bottom of this post. I ask for your participation not because I really want the trip to Africa. To be perfectly honest I'm probably not healthy enough to accept it as much as I would love to. Rather, for each vote P&G will provide clean, healthy drinking water to people who would not otherwise have it. Could there be any easier way to support such a worthwhile cause? I certainly can't think of one. You are allowed to vote once a day, so I encourage you to do so to ensure we give as much safe water as possible to people who so badly need it. I will send out a reminder by email every day to people who would like to be reminded. If you'd like to be added to my list please send me an email at somebodyhealme@dianalee.net and I will add you. You will be able to unsubscribe any time by sending me an email at the same address.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
I talk a lot about drinking plenty of water on this blog. Not only is it important for our health generally, but it is important for migraineurs specifically. It helps us prevent migraines when we stay hydrated and it helps us treat and cope with our migraines when we drink plenty of water during an attack. Yet I have never had to talk about where to find safe drinking water in all the times I have talked about consuming plenty of water. We tend to take clean drinking water for granted in the United States. Not to say that we don't have problems with poverty in our country because we do, but even the poorest of the poor in our country have access to an abundance of safe, clean drinking water. In many places in the world this is not true. Can you imagine how different life would be if we had to walk tens of miles to get clean water? How would this change our lives? We think we're tired at the end of the day now, but we honestly don't know from tired.
According to P&G:
- Less than 1% of the world’s fresh water is readily accessible for direct human use.
- Almost 1 billion people lack safe drinking water.
- More than 1.4 billion children under age 5 die each year because of diarrheal diseases associated with contaminated drinking water—more than HIV/AIDS and malaria combined.
- Every 20 seconds, a child in a developing country dies from a water-related illness.
- Providing safe, clean, drinkable water can reduce deadly diseases by about 50%.
- The daily per capita use of water in residential areas is: 350 liters in North America and Japan, 200 liters in Europe and 10-20 liters in sub-Saharan Africa.
- An American taking a 5-minute shower uses more water that the typical person living in a developing country slum uses in a day.
- Waterborne diseases remain the leading cause of illness and death in the developing world.
Please vote through the widget at the bottom of this post. I ask for your participation not because I really want the trip to Africa. To be perfectly honest I'm probably not healthy enough to accept it as much as I would love to. Rather, for each vote P&G will provide clean, healthy drinking water to people who would not otherwise have it. Could there be any easier way to support such a worthwhile cause? I certainly can't think of one. You are allowed to vote once a day, so I encourage you to do so to ensure we give as much safe water as possible to people who so badly need it. I will send out a reminder by email every day to people who would like to be reminded. If you'd like to be added to my list please send me an email at somebodyhealme@dianalee.net and I will add you. You will be able to unsubscribe any time by sending me an email at the same address.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
WEGO Health Insight Groups: Migraine
WEGO Health is looking for people who are active in the online migraine community to participate in Insight Groups with other migraine health advocates and active community members.
Upcoming Insight Groups: Migraine
If you're interested in being part of one of the groups they ask that you complete a fairly short online survey to see if you meet the profile they are looking to include. The groups will be held on Thursday, August 19 at noon, 4 pm, 6 pm, or 9 pm eastern time, so there should be a time that is convenient for all of us. Each group will last one hour and require you to be online and on the phone at the same time. All participants will be given a $25 Amazon gift card for their participation.
Migraine Community Survey
Let me know if you have any questions. If I don't know the answer myself I will find out for you.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Upcoming Insight Groups: Migraine
If you're interested in being part of one of the groups they ask that you complete a fairly short online survey to see if you meet the profile they are looking to include. The groups will be held on Thursday, August 19 at noon, 4 pm, 6 pm, or 9 pm eastern time, so there should be a time that is convenient for all of us. Each group will last one hour and require you to be online and on the phone at the same time. All participants will be given a $25 Amazon gift card for their participation.
Migraine Community Survey
Let me know if you have any questions. If I don't know the answer myself I will find out for you.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Monday, August 09, 2010
August Headache & Migraine Blog Carnival: How Do You Cope with Your Headache Disorder?
Welcome to the August 2010 Headache and Migraine Disease Blog Carnival.
The Headache & Migraine Disease Blog Carnival has been created to provide both headache patients and people who blog about headaches with opportunities to share ideas on topics of particular interest and importance to us.
The theme of the August carnival is "How do you cope with your headache disorder(s)?" It seems like a simple question, but there is an almost endless list of little and big things we do every day to cope with our headaches and migraines. From chatting online with our chronic buddies to cuddling with our pets, every single piece of the coping puzzle is important. We can use each other as the great resources we are for knowing how to make our lives tolerable and even good despite our headaches and migraines.
Read on for this month's collection of posts.
Steph submitted How I Cope on a Bad Day posted at Head Wise Woman.
Migrainista submitting Coping with a Migraine posted at Migrainista.
Teri Robert submitted My Methods for Coping with a Migraine posted at Putting Our Heads Together.
Betsy Blondin submitted How I Cope with Migraine Disease posted at Migraine Journey.
Cindy Nelson submitted Please Do Not Disturb, Migraine Zone posted at Is It Me or What? I've Been Noticing....
I recently wrote this post about coping: 10 Little Things That Help Me Cope with Chronic Pain.
Joseph Alban submitted The Greatest Acupressure Point for Headaches, posted at the Alban Acupuncture & Chinese Herb Clinic blog. I've used this technique before and found it quite helpful.
James Cottrill submitted Migraine and Food Allergy? New Study... posted at Headache & Migraine News.
I'm thrilled so many people were able to participate this time. Thank you for being part of the carnival and helping make it successful.
Submit your blog post to the September 2010 edition of the Headache and Migraine Disease Blog Carnival using our carnival submission form or by e-mailing your submissions to me by e-mail. The theme will be "Students and headache disorders - How have migraines & headaches affected your schooling? How has a headache disorder affected your school age child? How did you cope with balancing school and headaches or migraines?" Submissions are due by midnight on Friday, September 10. The September carnival will be published right here at Somebody Heal Me on Monday, September 13.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
The Headache & Migraine Disease Blog Carnival has been created to provide both headache patients and people who blog about headaches with opportunities to share ideas on topics of particular interest and importance to us.
The theme of the August carnival is "How do you cope with your headache disorder(s)?" It seems like a simple question, but there is an almost endless list of little and big things we do every day to cope with our headaches and migraines. From chatting online with our chronic buddies to cuddling with our pets, every single piece of the coping puzzle is important. We can use each other as the great resources we are for knowing how to make our lives tolerable and even good despite our headaches and migraines.
Read on for this month's collection of posts.
Steph submitted How I Cope on a Bad Day posted at Head Wise Woman.
Migrainista submitting Coping with a Migraine posted at Migrainista.
Teri Robert submitted My Methods for Coping with a Migraine posted at Putting Our Heads Together.
Betsy Blondin submitted How I Cope with Migraine Disease posted at Migraine Journey.
Cindy Nelson submitted Please Do Not Disturb, Migraine Zone posted at Is It Me or What? I've Been Noticing....
I recently wrote this post about coping: 10 Little Things That Help Me Cope with Chronic Pain.
Joseph Alban submitted The Greatest Acupressure Point for Headaches, posted at the Alban Acupuncture & Chinese Herb Clinic blog. I've used this technique before and found it quite helpful.
James Cottrill submitted Migraine and Food Allergy? New Study... posted at Headache & Migraine News.
I'm thrilled so many people were able to participate this time. Thank you for being part of the carnival and helping make it successful.
Submit your blog post to the September 2010 edition of the Headache and Migraine Disease Blog Carnival using our carnival submission form or by e-mailing your submissions to me by e-mail. The theme will be "Students and headache disorders - How have migraines & headaches affected your schooling? How has a headache disorder affected your school age child? How did you cope with balancing school and headaches or migraines?" Submissions are due by midnight on Friday, September 10. The September carnival will be published right here at Somebody Heal Me on Monday, September 13.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Weekly Wrap Up: August 8 - 14, 2010
In case you missed any of last week's posts or would like to revisit them, here is a list of Somebody Heal Me posts from August 8 to August 14.
10 Things You Probably Don't Know About Me
Simplify Life with Migraines & Chronic Illness: Entertaining
Fabulous ER Visit
Announcing August 2010 Headache Blog Carnival
July 30: Recommended Reading
What is a Migraine?
Travel Migraine Survival Kit
Behavioral Pain Management Dashboard
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
10 Things You Probably Don't Know About Me
Simplify Life with Migraines & Chronic Illness: Entertaining
Fabulous ER Visit
Announcing August 2010 Headache Blog Carnival
July 30: Recommended Reading
What is a Migraine?
Travel Migraine Survival Kit
Behavioral Pain Management Dashboard
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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Friday, August 06, 2010
Last Call: August 2010 Headache Blog Carnival
Last call to submit your posts for the August Headache & Migraine Blog Carnival. This month's theme is "How do you cope with your headache disorder(s)?" As always, posts on any topic relevant to living with headache disorders or migraine disease are welcome.
Posts are due by midnight tonight, Friday, August 6. You may e-mail them to me directly or send them through the Blog Carnival submission form: submit through this link.
The August carnival will be posted right here on Somebody Heal Me on Monday, August 9. I can't wait to see what you have to share!
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Posts are due by midnight tonight, Friday, August 6. You may e-mail them to me directly or send them through the Blog Carnival submission form: submit through this link.
The August carnival will be posted right here on Somebody Heal Me on Monday, August 9. I can't wait to see what you have to share!
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
August 6: Recommended Reading
Here are some of the interesting articles I've been reading this week. I think you'll learn a lot by reading them. I know I did.
Food Allergies in Migraine - Great explanation by Dr. Alex Maukop (New York Headache Center) of an interesting new study.
Consults Blog: Experts on the Front Line of Medicine - Have you been following the "Ask An Expert about Migraine" series on the New York Times? The Mayo Clinic's Dr. David Dodick has been sharing very useful information.
'Give Us Our Damned Records' Causes the First Meltdown in a While - The "Give Us Our Damned Records" movement is all about making sure patients can get access to their records in a timely and less costly fashion. You may be thinking this isn't an issue because we already have a legal right to see our records. Unfortunately this isn't enough of a protection to help seriously ill patients who are falling through the cracks.
Easing Into Meditation - One woman's experience with the difficult process of starting to meditate. You may remember the author Dawna Stone from The Apprentice: Martha Stewart. She was the winner. Incidentally Bethenney Frankel of Bravo's Real Housewives of New York & Bethenney Getting Married was the runner up on that show.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Food Allergies in Migraine - Great explanation by Dr. Alex Maukop (New York Headache Center) of an interesting new study.
Consults Blog: Experts on the Front Line of Medicine - Have you been following the "Ask An Expert about Migraine" series on the New York Times? The Mayo Clinic's Dr. David Dodick has been sharing very useful information.
'Give Us Our Damned Records' Causes the First Meltdown in a While - The "Give Us Our Damned Records" movement is all about making sure patients can get access to their records in a timely and less costly fashion. You may be thinking this isn't an issue because we already have a legal right to see our records. Unfortunately this isn't enough of a protection to help seriously ill patients who are falling through the cracks.
Easing Into Meditation - One woman's experience with the difficult process of starting to meditate. You may remember the author Dawna Stone from The Apprentice: Martha Stewart. She was the winner. Incidentally Bethenney Frankel of Bravo's Real Housewives of New York & Bethenney Getting Married was the runner up on that show.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Wednesday, August 04, 2010
Behavioral Pain Management Dashboard
I'll be checking my gauges and pacing on my trip to New York City this weekend. Otherwise there is no way I'll survive. I want to go to everything and party my butt off. It's just not possible or responsible. I've talked about checking your gauges before, but this is a perfect time to go over the concept again. I learned the concept at the Lemons Center for Behavioral Pain Management, where I went for treatment for six weeks in the winter of '09.
Pacing: An Important Tool for Coping with Chronic Illness
Just like when you're driving a car and monitoring the gauges on the dashboard for speed, fuel, oil and other messages the car gives you, pay attention to the messages your body gives you. These are the gauges to focus on:
(1) Pain
(2) Fatigue
(3) Stress (external factors such as work, family, money, etc.)
(4) Emotional State (internal factors such as anxiety, depression, etc.)
Rate each factor on a scale of 1 - 10.
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Content by Diana E. Lee.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Pacing: An Important Tool for Coping with Chronic Illness
Just like when you're driving a car and monitoring the gauges on the dashboard for speed, fuel, oil and other messages the car gives you, pay attention to the messages your body gives you. These are the gauges to focus on:
(1) Pain
(2) Fatigue
(3) Stress (external factors such as work, family, money, etc.)
(4) Emotional State (internal factors such as anxiety, depression, etc.)
Rate each factor on a scale of 1 - 10.
1 - 6 - Continue your activities; keep checking your gauges.
7 - 9 - Slow down; keep checking your gauges.
10 - Stop and take care of yourself.
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Tuesday, August 03, 2010
Travel Migraine Survival Kit
Preparing for BlogHer '10 has me thinking about which items I absolutely must bring to be prepared for migraine attacks and what I might be able to get away with leaving at home. It's a bit of a difficult balance. If I was driving I'd bring an entire tote bag of things I might need. Since I'm flying I just don't have that luxury, but I hate to leave anything essential behind and kick myself for it later. And let's just say I don't exactly have the gift for packing light.
Essentials:
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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Essentials:
- Treatment medications - smaller amounts than I might usually take
- Zip top bags for ice and in case nausea turns to vomiting
- Sleeping mask
- Ear plugs
- iPod
- Origins Peace of Mind On the Spot Relief
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
Monday, August 02, 2010
Weekly Wrap Up: July 26-August 1, 2010
In case you missed any of last week's posts or would like to revisit them, here is a list of Somebody Heal Me posts from July 26 to August 1, 2010.
10 Things You Probably Don't Know About Me
Simplify Life with Migraines & Chronic Illness: Entertaining
Fabulous ER Visit
Announcing August 2010 Headache Blog Carnival
July 30: Recommended Reading
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
10 Things You Probably Don't Know About Me
Simplify Life with Migraines & Chronic Illness: Entertaining
Fabulous ER Visit
Announcing August 2010 Headache Blog Carnival
July 30: Recommended Reading
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
What is a Migraine?
Everyone gets a headache from time to time, but how is a migraine different? How do you know if what you are experiencing is a migraine? What are the characteristics of a migraine? This is old hat for many of us, but every day someone experiences a migraine for the first time and not only doesn't know what to expect, but also may not realize she is experiencing something other than a run of the mill headache.
The biggest difference between a regular headache and a migraine attack is that a migraine attack involves symptoms other than just head pain. It's common for people who don't understand the difference to refer to a regular headache as a migraine, but they are actually very different.
Common Symptoms Associated with a Migraine Attack:
Stages of a Migraine Attack:
(1) Prodome - Only 30-40% of migraine sufferers experience this phase. For those who do this early warning can give them a leg up on using their treatment medications before the migraine attack becomes very severe. This phase is characterized by mood changes, cravings, neck stiffness, fatigue and yawning.
(2) Aura - About 20-25% of migraineurs experience aura. Again, having this early warning lets the patient know an attack is coming and to take treatment medication right away.
Common auras include:
(3) Headache - The painful part of a migraine attack can range from mild to very severe. The pain is usually one sided. The attack can last anywhere from 1 to 72 hours. If the attack lasts longer than 72 hours you should seek medical attention. The symptoms listed above tend to arrive during this phase of the attack.
(4) Postdome - This is the recovery period. Many migraine sufferers say they experience something like a hangover after the attack has ended. They can experience fatigue, diminished intelligence, depressed mood or feelings of euphoria.
Sources:
Anatomy of a Migraine
Migraine: Symptoms
Migraine Issues - What are the symptoms of migraine?
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
The biggest difference between a regular headache and a migraine attack is that a migraine attack involves symptoms other than just head pain. It's common for people who don't understand the difference to refer to a regular headache as a migraine, but they are actually very different.
Common Symptoms Associated with a Migraine Attack:
- one-sided head pain
- nausea, vomiting and/or diarrhea
- sensitivity to light
- sensitivity to sound
- sensitivity to smells
- pain that worsens with physical activity
- hot flashes or chills
- dizziness
- vertigo
- confusion
- depression and/or anxiety
- yawning
- fatigue
- irritability
Stages of a Migraine Attack:
(1) Prodome - Only 30-40% of migraine sufferers experience this phase. For those who do this early warning can give them a leg up on using their treatment medications before the migraine attack becomes very severe. This phase is characterized by mood changes, cravings, neck stiffness, fatigue and yawning.
(2) Aura - About 20-25% of migraineurs experience aura. Again, having this early warning lets the patient know an attack is coming and to take treatment medication right away.
Common auras include:
- visual disturbances such as flashing lights, spots or blurry vision
- smelling things that aren't there
- confusion
- difficulty finding words
- dizziness
- hearing things that aren't there
- extreme sensitivity to touch
(3) Headache - The painful part of a migraine attack can range from mild to very severe. The pain is usually one sided. The attack can last anywhere from 1 to 72 hours. If the attack lasts longer than 72 hours you should seek medical attention. The symptoms listed above tend to arrive during this phase of the attack.
(4) Postdome - This is the recovery period. Many migraine sufferers say they experience something like a hangover after the attack has ended. They can experience fatigue, diminished intelligence, depressed mood or feelings of euphoria.
Sources:
Anatomy of a Migraine
Migraine: Symptoms
Migraine Issues - What are the symptoms of migraine?
Subscribe to the Somebody Heal Me feed: Subscribe in a reader or subscribe by e-mail. Follow me on Twitter @somebodyhealme.
DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.
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