Comments on Somebody Heal Me: The Let Down of Not Having Answers

Diana -- I'm so sorry that RFA didn't end ...

2009-07-20T22:54:54.681-05:00

Diana -- I'm so sorry that RFA didn't end up being your answer. This sentence:

'In a way it's kind of astounding and quaint that I can still generate hope like that after all this time.'

resonated with me completely. In a way we never quite lose hope, right? I hope your next appointment is better and offers new ideas for treatment.

Oh, I know your pain. Well, not your actual pain, ...

2009-07-15T17:21:57.174-05:00

Oh, I know your pain. Well, not your actual pain, but the pain of getting my hopes up for a cure/treatment/improvement and having it not pan out. It's even worse when you get that hint of success, like your two weeks of major improvement, and then it all goes down the drain. :-(

All the previous posters made all the points (and then some!) that I was going to say. But I thought I&

I'm sorry the treatment didn't work as you...

2009-07-15T14:25:42.175-05:00

I'm sorry the treatment didn't work as you hoped it would, but I can totally relate to going to each appointment with that tiny kernel of hope that this time they will have found the right answer.

It hasn't happened yet, and after each false positive, failed treatment or broken promise of a cure, I wonder if I have the strength to go through it all again.

And

Hi Diana - So sorry things are so difficult. I&#...

2009-07-12T18:43:53.444-05:00

Hi Diana -

So sorry things are so difficult. I'm glad you still have hope - we can't go on without it. More and more I think it's not that any one thing will turn the tables but that finding the right combination will improve things. Maybe the rfa is part of your tool kit. Hang in there, hon! I'm thinking maybe some of what Dr. Young said on my teleconference at the

occipital nerve stimulators are supposed to work f...

2009-07-10T10:02:36.453-05:00

occipital nerve stimulators are supposed to work for occipital neuralgia related headache - is this a possibility for you? It was my last ditch effort for my headache.
I was told that some treatments don't last as long when you have SEVERE pain. Maybe that is what is happening with you?? So sorry the rhizotomy didn't last...

Oh Diana, I've been in this place and it is no...

2009-07-10T09:32:05.900-05:00

Oh Diana, I've been in this place and it is not fun. After 5 and a half years of chronic migraine, I've had to accept that there are no specific answers for chronic headache and that management is the best goal. Hope will waver, but it is so important to always have hope. Don't give up - hang in there! I'm going back to see Dr. K in August before school starts up for my

I'm so sorry the treatment didn't work lon...

2009-07-10T08:27:09.077-05:00

I'm so sorry the treatment didn't work longer. There's a fine line between acceptance of what is and maintaining hope for better treatment. I think it's possible to do both but often our feelings swing back and forth. Try to avoid thinking it's the end of the road for effective treatments. Medical science advances at a rapid rate and the future treatments for many conditions